Stepping Out To Cure Scleroderma 10th Annual Walk

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June 15th in Riverside Park at 96th Street

The Scleroderma Foundation/Tri-State, Inc. Chapter will hold the 10th annual Stepping Out to Cure Scleroderma Manhattan walk in Riverside Park at 96th Street on Sunday, June 15, 2014. Registration and check-in start at 9 a.m. and the walk one mile course begins at 10:15 a.m.

Join Manhattan walk leaders Lindsay Cowan and Olga Casarella, along with patients, families, and friends for a lively and fun event that raises money for support services and research. The walk helps bring awareness to scleroderma, an autoimmune disease that affects the body’s connective tissue - for which there is no known cause and no cure - impacting an estimated 30,000 men, women, and children in the tri-state area. Food, raffles, and entertainment round out a great day in the park.

Participants can register to walk or sponsor a walker online at http://walks.SclerodermaTriState.org before the event.

The registration fee is $20 for participants 16 years and older, $5 for children ages 5 to 15, and children under five are free. Registration forms and donations can also be mailed to the Tri-State office. Day of event registration is $25 for participants 16 years and older. All pre-registered participants receive a T-shirt, and awards are given to the individual and team that raise the most money.

The Manhattan walk and Manhattan and Sclero Men Support Groups are means of helping people live with this mysterious and frequently disabling disease. June is Scleroderma Awareness Month, and includes the Stepping Out to Cure Scleroderma walks across the United States, and a website, www.sclerodermaawareness.org, that provides ideas to help supporters take action, such as snapping selfies to be used in an upcoming campaign. There will also be an hourly presentation of a new awareness PSA on the CBS Digital Billboard on 42nd Street in New York City. The Scleroderma Foundation joins organizations around the world in recognizing June 29 as World Scleroderma Awareness Day.

Tri-State Executive Director Jay Peak states that, “The Greater New York City area is home to a significant number of people living with scleroderma, and the Tri-State Chapter works to support patients and families, and has advocated for resources to help find a cure for this disease for more than 30 years.”

Stepping Out to Cure Scleroderma is sponsored in part by Diamond Sponsor, Bethpage Federal Credit Union; National Gold Sponsor, Actelion Pharmaceuticals; platinum sponsor Val Fenti; and gold sponsor AriZona Beverage Co.

For more information on scleroderma and the Scleroderma Foundation / Tri-State, Inc. Chapter, call (800) 867- 0885 or visit www.SclerodermaTriState.org. You can also find us on Facebook, Instagram, Twitter and YouTube.

Scleroderma [sklair-uh-derm-uh] is a chronic, often progressive, autoimmune disease in which the immune system attacks one’s body. Scleroderma means “hard skin.” It can cause a thickening and tightening of the skin. In some cases, it causes serious damage to internal organs including the lungs, heart, kidneys, esophagus and gastrointestinal tract. As scarring, or sclerosis, of these organs and organ systems progress, they work less effectively, and can lead to organ failure and death.

Some medications and treatments can help with certain symptoms, but there is no cure for scleroderma. The disease affects about 300,000 people across the U.S. There are an estimated 30,000 cases of scleroderma in the Tri-State Chapter’s Mew York, New Jersey and Connecticut service area.

The Scleroderma Foundation/Tri-State Inc., Chapter is a 501(c)(3) non-profit organization serving people living with scleroderma in New York, northern New Jersey and Connecticut. The chapter has a three-fold mission which is to promote the welfare of individuals and families affected by scleroderma, increase public awareness and support scleroderma research.

The organization helps scleroderma patients and their families cope with the disease through support groups, educational forums, physician referrals and educational information such as articles, books and DVDs, available through our lending library and a growing number of videos online at www.sclerodermavideo.com.

More about the work and mission of the Tri-State Chapter can be found at www.SclerodermaTriState.org and keep up-to-date on events and other happenings on Facebook (www.facebook.com/SFTriState) on Twitter (@sclerodermaTS) and on Instagram (sclerodermatristate).

The Scleroderma Foundation is the national organization for people with scleroderma, their families and friends. It was formed Jan. 1, 1998, by a merger between the United Scleroderma Foundation and the Scleroderma Federation.

The Scleroderma Foundation is headquartered in the metro Boston area in Danvers, Mass. It is a 501(c)(3) non-profit organization dedicated to serving the interests of people living with scleroderma. The Foundation has a network of 23 chapters and 150 support groups committed to carrying out the three-fold mission of support, education and research. The Scleroderma Foundation is the largest nonprofit funder of peer-reviewed medical research, making available at least $1 million per year in new research grants to find the cause, better treatments, and a cure for scleroderma.

For more information about the Scleroderma Foundation, visit www.scleroderma.org or call (800) 722-HOPE (4673). You also can find the Foundation on Facebook

(www.facebook.com/sclerodermaus) and Twitter (@scleroderma)

 

 

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